Emma Heming Willis recently took major decision amid her husband Bruce Willis battle with frontotemporal dementia.
The former model, who tied the knot with Bruce in 2009, finally announced to launch an Emma & Bruce Willis Fund for dementia research and caregiver support on March 12.
Given the Die Hard actor’s condition, Emma decided to start this program which is dedicated to “advancing understanding of frontotemporal dementia (FTD) by raising awareness, supporting promising scientific research and strengthening support for caregivers”.
The author of The Unexpected Journey shared this big news while receiving the Susan Newhouse & Si Newhouse Award of Hope at The Association for Frontotemporal Degeneration's Hope Rising Benefit in New York, reported by PEOPLE.
“This journey has opened my eyes to the realities so many families face when a loved one is living with frontotemporal dementia,” said the 47-year-old in her acceptance speech.
Emma stated, “I believe deeply in the importance of supporting research while also showing up for the caregivers who carry so much every day.”
Explaining what she will do with the fund, the author pointed out that through this charity, she would like to “deepen understanding of FTD and ensure families facing it feel seen, supported, and less alone”.
Before concluding her speech, Emma expressed hope that her husband Bruce would be “proud” of her.
“He has always led with generosity and heart, and I know he would be proud to see this effort helping families facing this disease,” added the former actor’s wife.
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