Jesy Nelson opens up about her twins’ emotional journey

Jesy Nelson, the 34-year-old former Little Mix singer, has shared a poignant video of one of her eight-month-old twin daughters feeding through a medical tube as she and partner Zion Foster continue to care for the girls following their recent diagnosis with spinal muscular atrophy (SMA) type 1, a severe genetic muscle-wasting disease.

In the Instagram clip posted over the weekend, Nelson is seen interacting with her daughter, highlighting moments of joy amid the challenges of caring for children with a life-altering condition. 

SMA type 1, which affects muscle strength and can impair breathing and swallowing, often presents in infancy and can be life-threatening without early treatment.

Earlier this week on the U.K. talk show This Morning, Nelson became emotional as she described the practical and emotional toll of caring for Ocean Jade and Story Monroe, explaining she has learned to perform medical tasks, such as inserting feeding tubes and using breathing support machines at home. 

According to Daily Mail, she also shared that one twin requires a breathing machine at night due to respiratory weakness.

Nelson has spoken candidly about the heartbreak of the diagnosis and the way her life has shifted since the news, expressing a desire to raise awareness of SMA so other parents can recognize symptoms earlier. 

Furthermore, medical experts say early detection and treatment can significantly impact outcomes for children with SMA.