Jesy Nelson makes shocking revelation about daughter's health

Jesy Nelson has revealed that her eight-month-old twin daughters have been diagnosed with a rare and severe genetic condition, a development she described as one of the “most heartbreaking” periods of her life. 

The former member of Little Mix announced in an emotional video on social media that the girls, Ocean Jade and Story Monroe, are living with Spinal Muscular Atrophy (SMA) Type 1, a disorder that affects muscle strength and mobility and is considered the most serious form of the disease.

Nelson, who welcomed the twins in May 2025 with her partner Zion Foster after a premature birth, said that doctors have told her the children will “probably never be able to walk” and may struggle to gain neck strength. 

According to Daily Mail, the singer explained that early signs, including limited leg movement, were initially dismissed due to the girls’ prematurity, but later assessments at Great Ormond Street Hospital confirmed the diagnosis. 

Despite the devastating prognosis, the twins have begun treatment, which Nelson says has been essential for their survival.

Using her platform, Nelson has launched a campaign to include SMA in the NHS newborn screening test, arguing that earlier detection could save lives. 

Moreover, she said she feels a “duty of care” to raise awareness so other families might recognize symptoms sooner.