Jesy Nelson turns heartbreak into purpose with new role at SMA UK

Jesy Nelson has turned her heartbreak to have a purpose as she marked the milestone of becoming a patron of Spinal Muscular Atrophy UK.

This comes as a result of her twin daughters being diagnosed with SMA1.

The former-Little Mix crooner had premature babies Ocean Jade and Story Monroe Nelson-Foster in May together with her fiance Zion Foster. 

The 34-year-old has since then clearly documented their quest to create awareness concerning the spinal muscular atrophy.

For the unversed, it is a rare genetic disorder that leaves individuals with severe muscle weakness and difficulties in breathing.

In her announcement of a new position, Nelson penned on her Instagram, "This truly means so much to me. I’ve been deeply touched by the SMA community."

Continuing, "from the strength of the children, the resilience of the families, and the love that surrounds them every single day.

She committed to lobby the SMA test to be included in the newborn heel-prick screening, as she will then use her platform to continue to raise awareness not only on behalf of my girls, but to also help families experiencing the same circumstances.

Her petition to add SMA to the standard new-born screening has already gone beyond 142,000 signatures.

This means that it should become a subject of parliamentary discussion. She has also been able to meet with UK Health Secretary Wes Streeting in the discussion of early detection.

Moreover, Nelson in a strong message stated, “I will keep campaigning with everything I’ve got, for my girls and for every family who deserves to feel seen, heard and supported.”

She had earlier promised that she will not stop until some official decisions are taken on behalf of the community.