English singer Jesy Nelson has revealed that her twin babies have been diagnosed with a rare genetic condition.
The 34-year-old due to pregnancy complications gave birth to Ocean Jade and Story Monroe at 31st week, prematurely on May 15.
On Sunday, Nelson took to her Instagram and shared video for public awareness as her girls have Spinal Muscular Atrophy (SMA), which she described as the "most severe muscular disease".
Notably, the diagnosis meant that the pair would "probably never walk", effecting every muscle in the body, down to legs, arms, breathing, swallowing.
In the video the crooner is seen completely shaken as she explains that her daughters had not been showing as much movement in their legs, and were struggling to feed properly.
However, the practitioners claimed that the twin won’t be hitting milestones as other children so she didn’t took the notice.
"After the most gruelling three, four months, and endless appointments, the girls have now been diagnosed with a severe muscular disease called SMA type 1," she stated.
Jesy continued, "Essentially, what it does is, over time, it kills the muscles to the body, and if it's not treated in time, your baby's life expectancy will not make it past the age of two."
The girls were assessed at Great Ormond Street Hospital in London, she marked, “they probably will never regain their neck strength, so they will be disabled”
Still the star told being grateful because if they don't have it, they will die. Since the diagnosis Nelson revealed that she had to act as a nurse and put her daughter on "breathing machines."
Jesy added that her last three months and were the most heartbreaking as this turned her life completely.
While Jesy still believes her daughters would "defy all the odds" and that with the right help, "they will fight this".
For the unknown, SMA is a progressive muscle-wasting disease being fatal within two years if untreated.